Sunday, May 16, 2010

Great Strides 2010

Wow.  There are no words.  The support we received this Saturday was amazing.  Think of it - a beautiful spring day at Applebee's Park.  A sea of pink.  All for one cause and for one little girl.  In the immortal words of Miss Olivia Kate, "it is amazing!"

The Great Strides walk was better than I could have ever imagined.  I will admit, Jeremy and I approached May 15th with quite a bit of trepidation.  You see, when you launch into fundraising for a cause that is very personal to you, it is a bittersweet endeavor.  On one hand, you feel empowered.  On the other, you are reminded every time you participate in a fundraising event of the obstacles you face in battling CF.  I was warned by many mothers that this reminder can make a Great Strides event very difficult to endure.  Some mothers have told me that they do not attend because they cannot handle seeing some children and adults who are much sicker than their children or families walking in remembrance of a child lost.  These thoughts haunted me the week of Great Strides.  While I wanted, and needed it to be a positive experience, you can never quite divorce yourself from the fact that you are not just a participant - you are living the experience on a daily basis.  And while many will walk or give money, they will probably spend the following week doing normal things and barely think about that day.  But that isn't the case for us.  We live it and sometimes it is hard to be reminded of that fact, even in dealing with a positive experience.

Had I known the stress that kind of trepidation and fear would have caused me the week prior to the walk, I may not have offered to host an after-walk brunch.  Of course, at the time, I thought we would have 20-25 people walking and I felt confident I could handle that.  After all, when we started this fundraising effort, Amy posted a goal of $500-1,000.  But the money kept rolling in.  $1,000.  $2,000.  $5,000.  $8,000.  Huh?  $8,000.  Unbelievable. Oh, and by the way, the emails kept coming in - the RSVPs and the numbers crept up.  40.  50.  60. 70.  80!  Oh my.  Luckily, the dinner club girls realized that I was in way over my head and offered to help with the food.   Then others started stepping in and offered to buy food and bring food for the brunch.  My family realized that I could not manage to hold those kinds of numbers in my house and they suggested a tailgate.  And I resisted, really, all of it.  I wanted to give something back.  But to be helping me, that crowded my idea of giving back.  I am not the type of person, I am realizing, that accepts help very easily.  I choke down the idea.  I would rather be the person giving than the person receiving.  The only way I can really explain my feelings about it is through my daughter.  The day of the walk, Olivia told me that she didn't want anyone commenting about her t-shirt and she didn't want to show anyone her t-shirt.  In other words, she didn't want to be singled out.  I get that.  It is so hard for me to be singled out by so many people with offers of help.  So I resisted and I feel bad for it now, because boy, did I ever need the help!

Everything turned out perfect.  The sun was shining and the weather was warm.  The people kept pouring in and seeing that sea of pink was quite overwhelming.  If there were others at the walk that were walking in remembrance or because they had CF, I barely noticed, because I was surrounded by my family and friends.  Some of those friends I didn't even know I had and some came from far distances.  People that I never would have guessed gave money and walked on our behalf.  Sometimes you have no idea the friends you really have in life until an event like this happens.

And you know what?  I worried for nothing.  It was one of the most positive experiences of my life.  The last 5 months have been hell.  There is no other words to describe it.  Pure hell.  I know that others have a more difficult time than I do, but dealing with the diagnosis has been harder on me than I ever imagined it would be.  I guess it is all relative.  But on Saturday, I felt real hope.  And that was a great feeling.  My dad told me that he was talking to one of the walkers, who came from Somerset, and thanked her for coming.  She replied, "I know what support means."  I know what support means now too.  It is being there when someone needs you the most. We needed the support and we got it on Saturday.

People walked.  People talked.  People ate (a bunch as you can tell by the pictures).  And people raised awareness.  We gained attention.  Last year, the Lexington Great Strides event raised $2,000.  This year, I think I remember (and I was in a fog, so don't quote me) the walk raised $23,000 and probably a little more.  I know that we were a big part of that.  The Foundation was so excited and I promised them that I would do whatever was in my power to continue the momentum to make this event as successful in the future.  I had to make that promise - and it is a promise I pray I can keep.

Lilly was a perfect angel at the walk.  She slept through most of the walk itself, but she was full of smiles for everyone before and after.  She is, of course, clueless, but I am saving her t-shirt and other mementos and one day I know she will realize what people have done (and are doing) for her and she will be so thankful.  For now, I will have to be her voice in saying "thank you" to everyone who helped - by donating, by walking, by making food/buying food, by setting up the tailgate, by calling me to check on me, and by just being there.  It means the world - really - and I feel like a broken record, but I cannot say "thank you" enough.

I cannot possibly point out everyone who helped along the way, but I do some special "shout outs!"

Thank you to Amy Wickliffe (dinner club gal, sorority sister, and overall great person) for organizing our efforts, t-shirts, etc.  She was our Team Captain and she put in an incredible amount of time in helping organize things.  

Thank you to the dinner club girls - Katie, Amy, Ellen, Laura, Alex, Mills, Ashley, Kristen, Lauren, and Sara (Veen) (oh, God, who am I missing!) - for buying food, making food, calling me/texting me/emailing me to check on me.  Some helped put together the t-shirts too and many traveled quite a distance to be there.  Those that could not were there in spirit.  You cannot imagine a better group of friends.  I am not worthy of their friendship, but blessed to have them.  

Thank you to Uncle Bob and Aunt Windy, who set up an amazing tailgate at the last minute.  

Thank you to my cousin, Trey, and his wife, Cara, who brought fruit salad and pork tenderloin (delicious!).  

Thank you to Alex and her sister and stepmother for bringing the donuts.  

Thank you to Grandma Cranfill for buying the ham biscuits and for Connie Minor and her husband for discounting the biscuits so the additional money could go to "Team Lilly."

Thank you to Nanny who prepared the wonderful monkey bread.  Thank you to Nanny (and Papaw) who cared for Lilly while we cleaned up.

Thank you to my mom, who cared for the girls while I prepared the night before.

Thank you to our Kileen, Texas Great Strides walkers who walked on behalf of "Team Lilly."  In particular, thank you to Kayla Day.  I have never met this woman before, but she had a heart so big that when she heard about Rusty's niece (my brother, Rusty, and her husband are in the Army together), she wanted to do something special to help and she did.  Kayla formed a branch of Team Lilly in Kileen, Texas, near Fort Hood, and raised money, created a team (and t-shirt!) and walked on her behalf.  Like I said, sometimes you don't realize the friends that you have until an event like this.

I know I am probably forgetting someone, but it is because it is late, I am tired, and still a little emotional, so I hope you will forgive me.

I don't know the final numbers, but I am guessing we probably cleared $10,000.  I will keep you posted when I know.  What a fabulous success, and fun day, and I hope to see many of you there next year!




Team Lilly



A sea of pink - we were a force to be reckoned with!



You can barely see it, but I am wearing a picture of Lilly (courtesy of my cousin, Trey)
 and Lilly is "wearing" her t-shirt on her stroller.



Lilly, of course, slept through most of the walk.



No words.  This is even funnier when you consider my Uncle Bob (with the "Lilly" hat) 
is wearing flip flops.  We cannot be of the same genetic pool.



Olivia and Lilly's nanny, Ashley (in the middle), and her boyfriend and roommate came out.



Our fabulous CF doc, Dr. Kanga, walking (with the red shirt under the Great Strides shirt)...



Nanny and Papaw displaying the Team Lilly shirts proudly...



Olivia enjoying the after-walk brunch with "Aunt Pammie"



Pictures from the after-walk brunch....





























The spread of food - wow!



My Chi-O Girls



It is all for you.

Monday, May 03, 2010

Olivia's 3rd Birthday



Our first birthday cupcake on the actual day of our birthday (from Gigi's Cupcakes - yum!)


Perfect for the birthday princess!


Celebrating on our new swingset (not quite completed but getting there!)


Party time!



We must have a princess cake for a princess party!



I am 3 years old today!



Even Grandpa had to get into the princess theme!


Cinderella and Snow White have nothing on us!



I think Lola already has a thing for older men!  Watch out Aunt Holly!


Tearing into presents!


Apparently the cake was good!


Lilly and Lola hanging out...


Mommy and Daddy with the birthday girl!



So grown up at 3 years old!

I cannot believe my little girl is 3 years old!  Olivia turned 3 on April 30th.  Of course, that falls on a Friday so we thought we would celebrate on Sunday - try explaining that to a 3 year old!  It didn't go over well.  So on Friday, when my nanny called in sick, Mommy took her to breakfast at Chik-Fil-A, at her request, to let her eat hashbrowns and play on the playground.  Then we went for a princess cupcake at Gigi's so we could have birthday cake. While I was able to spend the morning with Olivia, Daddy and Uncle Chris got the short end of the stick - they spent 9 hours trying to assemble Olivia's new swingset from Mommy and Daddy, Nanny and Papaw, and Grammie and Grandpa.  Unfortunately, the swingset takes a little more than 9 hours to assemble.  Due to the flood that hit us this weekend, we weren't able to finish it, so Olivia was a little disappointed, but in the life of a 3 year old, she quickly got over it. 

To celebrate her birthday, we also threw a small Disney princess birthday party on Sunday with a few friends and family.  Olivia dressed as Cinderella for a total of 5 minutes, but others came prepared for the theme (thanks Anderson and Abbey!).  Olivia had a wonderful time playing with her cousins and opening presents.  She particularly enjoyed her cake - she started sticking her fingers in it before we could even sing "Happy Birthday!"  Everyone bought her so many cute presents - thank goodness I have a play room or it would take over my house!

We have definitely noticed that Olivia is now 3.  She finally gave up the pacifier while we were on vacation.  Rather than doing anything cutesy (like my pacifier fairy idea), Jeremy convinced me to just take it from her on vacation, when she is too distracted and tired to protest.  It was a brilliant idea.  We just told her that pacifiers weren't allowed on airplanes or at the "castle" at the beach.  She bought it.  She was too tired and distracted to care too much, although Nanny did have to deal with some late night crying due to no pacifier (sorry Nanny!).  She has asked for it a couple of times since we came home, but has handled it pretty well.  The difficult part I am finding is that she cannot soothe herself to sleep very well without it, so we are spending a lot of nights laying in bed for an hour or so still awake and sometimes crying herself to sleep.  If anyone has any suggestions on how to deal with this, I would love to hear them, because it is driving me crazy.  But I assume it is penance for my awful decision to let her have a pacifier as long as I did.  I made my bed, so now I am laying in it.

I have also noticed that temper tantrums have escalated since Olivia turned 3.  She wants to manipulate everything.  This is particularly bad when she decides that she wants me to sit on the right side of the couch and I sit on the left - then watch out.  If you don't do exactly what she says, she throws a fit.  I am completely worn out with this attitude of hers, but trying to be patient - I have heard that 3 can be more difficult than 2.

Beyond the tantrums, Olivia is quite a riot these days.  She can say the funniest things and really have me chuckling.  Most are too personal to put on the blog (of course), but if you see me in person, ask, and I can have you laughing for hours!  She asks a million questions and has hit the dreaded "why" stage.  I try to explain things to her logically and in a way she could understand, but sometimes I just say "because I said so."  She is like a broken record!  She also has quite the personality and really takes everything in.  I can have full conversations with her and she understands so much - it scares me how grown up she seems!  Time is slipping by too fast!  


Saturday, May 01, 2010

Destin, Florida 2010


"Checking my emails, Mom!"



Giddy Up!



Mommy and Olivia



She was so excited when she hit the ball!



Cooper was less than excited when he saw where his ball went!



Enjoying the playground after breakfast at the Broken Egg!



The John Wall Dance?  No - Olivia is showing us her pythons (aka muscles)!



Cooper and Uncle Matthew in their usual position (at the beach, at the pool, etc.)



Aunt Holly, Cooper, and Uncle Matthew



Olivia and Cooper (right before she let go of his hand and poor Cooper bit it in the ocean!)



Me and my brothers, Randy, Rusty, and Matthew



Jeremy and I at the Red Bar in Grayton Beach



One of our few attempts at a "sisters" picture...



We loved staying at Sunny Side Up - thank you Debbie Hill!



Sunbathing at the pool (with 70 SPF on...)



How could you resist this smile?



Mommy and Lilly



Lilly thought we were all hysterical!



The Neikirk Family



The Lanksters



Holly Neikirk and Holly Lankster



Chilling at the beach...



Can I ride the boat?



Prior to Katie's rehearsal dinner...



Mommy and Daddy



Aunt Windy, Katie, Grammie, and Mommy at Katie's wedding



Grammie and Mommy



With the beautiful bride!
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