It is official. We went to UK early this morning for a second sweat test. Dr. Kanga called us shortly before noon to let us know that it was positive. We are, in short, heartbroken. We have been preparing ourselves for this result for a long time, but that doesn't make the news any easier to bear. I really don't have words to describe how I feel - just a gut wrenching grief over the diagnosis.
We will meet with Dr. Kanga in the morning to discuss the diagnosis and treatment. Hopefully then we will have a better idea of the ramifications of this diagnosis.
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My heart is breaking right along with as you face this diagnosis. I cannot imagine the grief and agony you are feeling. I have no words that can comfort you, but please know that I am here to support you and love you through all of this. Lilly is a lucky girl to have you, Jeremy and Olivia! My thoughts and prayers are with you constantly during this difficult time. Love you!
ReplyDeleteHolly, I am so sorry to hear of Lily's diagnosis. God has faith in you and Jeremy as parents that you have the strengh and courage to face this situation and come out of it stronger and wiser. God has gifted Lily to you knowing that she will be in the best of care. Your family is in my thoughts and prayers. As you journey down an unknown road, I pray that in your time of darkness and when you are feeling lost that you feel the love of your friends and family surrounding you and I pray that makes the road easier to travel. God Bless........Courtney Wesley
ReplyDeleteHolly, I received an email (passed on to me by Judy Marsh from Stephanie) this afternoon about your family and this blog. First, it's been a long time - you have a beautiful family. BEAUTIFUL! What a lucky lady you are. I know lucky might not be what you're feeling right now. But, I'll make you a promise this very minute. I will be praying for you daily. I'll be praying that God gives you a peace that passes understanding. That He'll wrap his arms around this beautiful baby girl and grant her comfort and healing and that your family will be surrounded by support and love. I'll be keeping up with your blog so that my prayers can be specific. Please know that my thoughts are with you and your family during the difficult times ahead.
ReplyDeleteKristin Marsh
www.theacmarshfamily.blogspot.com
Holly -- you and your family are in my thoughts and prayers.
ReplyDeleteHolly - You don't know me but Jack Cranfill is a very dear friend to my family and I. He told me about Lilly and her recent diagnosis and I am so sorry to hear this. One of my best friends, Mylissa Horrocks, runs a non-profit called Habitat for Hope in Memphis, TN and will be contacting you by the end of this week. She is traveling and is without internet or she would have gotten in touch with you sooner. She has some information that may be of help. I also wanted to let you know that I am praying for you daily. I know this is very hard and I can't even imagine what you and your family are going through but you are in my thoughts and prayers on a daily basis. I pray that God will give you peace and comfort during this time. I also pray that he wraps his hands around your heart and brings you comfort. - In my thoughts and prayers always, Amanda Bevins
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